Donate today. Give Ivy a chance to thrive.
Every gift—big or small—helps the groundbreaking biotech non-profit n-Lorem make Ivy the precision genetic treatment she needs.
A rare genetic race against time
Ivy is one of only three children known to have her specific, ultra-rare mutation of the GRIA2 glutamate receptor gene. At just 18 months old, she is already grappling with multiple features of GRIA2 neurodevelopmental disorder including drug-resistant epilepsy, cerebral vision impairment, and serious developmental delays.
Without intervention, this toxic mutation will continue to damage her brain cells, causing irreversible and widespread harm. We aren't just fighting a diagnosis, we are fighting to stop the clock before her brain begins losing the ability to re-root and re-grow.
A precision treatment for Ivy
Ivy’s only hope is a personalized Antisense Oligonucleotide (ASO) treatment. This ASO is designed to silence her harmful, mutated GRIA2 copy while allowing her healthy copy to function normally.
We have partnered with the n-Lorem Foundation, a world-renowned non-profit that has already successfully treated 50 patients with a spotless safety record. Their rigorous process can deliver this life-changing medicine to Ivy—but only if we hit our funding goals.
Our Goal: Raise the necessary funds by March 2027 to begin clinical treatment before Ivy turns five, giving her the precision medicine she needs to thrive.
Frequently Asked Questions
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Yes. All donations go directly to n-Lorem Foundation, which is a registered 501(c)(3) tax-exempt organization, meaning all donations are tax-deductible within the guidelines of U.S. law.
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Every dollar goes directly to n-Lorem Foundation to support the development of a personalized treatment for Ivy. Make sure to write “Ivy’s GRIA2 directed research program” in the comment field or memo line so n-Lorem knows you want your donation to specifically support their work on Ivy’s case.
And the impact of your donation doesn’t stop there. n-Lorem’s success on Ivy’s case will benefit other patients will similar ultra-rare mutations, helping those who come after her get treated faster.
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Make a check payable to:
N-LOREM FOUNDATION
P.O. Box 104562
Pasadena, CA 91189 – 4562
Make sure to write “Ivy’s GRIA2 Directed Research Program” in the memo line.
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You can give via PayPal, electronic funds transfer, wire transfer, stocks or mutual funds, qualified charitable distributions from an IRA, and more. Visit https://www.nlorem.org/support/ for all ways of giving and instructions.
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An email receipt is automatically sent by n-Lorem shortly after your donation is processed. Please save this for your tax records. For support with receipts, please contact donations@nlorem.org.