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Every gift—big or small—helps the groundbreaking biotech non-profit n-Lorem make Ivy the precision genetic treatment she needs.

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A rare genetic race against time

Ivy is one of only three children known to have her specific, ultra-rare mutation of the GRIA2 glutamate receptor gene. At just 18 months old, she is already grappling with multiple features of GRIA2 neurodevelopmental disorder including epilepsy, cerebral vision impairment, and serious developmental delays.

Without intervention, this toxic mutation will continue to damage her brain cells, causing irreversible and widespread harm. We aren't just fighting a diagnosis, we are fighting to stop the clock before her brain begins losing the ability to re-root and re-grow.

Ivy’s only hope is a personalized Antisense Oligonucleotide (ASO) treatment. This ASO is designed to silence her harmful, mutated GRIA2 copy while allowing her healthy copy to function normally.

We have partnered with the n-Lorem Foundation, a world-renowned non-profit that has already successfully treated 50 patients with a spotless safety record. Their rigorous process can deliver this life-changing medicine to Ivy. Our fundraising goal is important! It supports n-Lorem’s work to create a treatment for Ivy.

Our Goal: Raise the necessary funds by March 2027 to begin clinical treatment before Ivy turns five, giving her the precision medicine she needs to thrive.

A precision treatment for Ivy

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Frequently Asked Questions

  • Yes. All donations go directly to n-Lorem Foundation, which is a registered 501(c)(3) tax-exempt organization, meaning all donations are tax-deductible within the guidelines of U.S. law.

  • Every dollar goes directly to n-Lorem Foundation to support the development of a personalized treatment for Ivy. Make sure to write “Ivy’s GRIA2 directed research program” in the comment field or memo line so n-Lorem knows you want your donation to specifically support their work on Ivy’s case.

    And the impact of your donation doesn’t stop there. n-Lorem’s success on Ivy’s case will benefit other patients with similar ultra-rare mutations, helping those who come after her get treated faster.

  • Make a check payable to:

    N-LOREM FOUNDATION

    P.O. Box 104562

    Pasadena, CA 91189 – 4562

    Make sure to write “Ivy’s GRIA2 Directed Research Program” in the memo line.

  • You can give via PayPal, electronic funds transfer, wire transfer, stocks or mutual funds, qualified charitable distributions from an IRA, donor advised funds, and more. Visit https://www.nlorem.org/support/ for all ways of giving and instructions.

  • An email receipt is automatically sent by n-Lorem shortly after your donation is processed. Please save this for your tax records. For support with receipts, please contact donations@nlorem.org.